annanotbob2's Diaryland Diary ----------------------------------------------------------------------------------------- More from notebook Day 4 Couldn't get through to the ward on the phone to ask how ED's night went, how she is, so came in earlier than I intended, can't manage to get hold of anyone who knows. It's all aprons and gloves before you come into her room, leave them in the bin and wash your hands thoroughly before leaving, every time, in or out and I can't find the nurse who's dealing with her today... ED's groaning a bit on the out breath, sign of pain, nothing really happening to make her better, antibiotics keeping infection at bay but nothing addressing the cause - whatever's going on in that bloated belly. Horrible things:
So that was as far as I got. Awful today, really fucking awful. I went off at one o'clock for a meeting about a tribunal to appeal against the decision to reduce my benefits, which was a barrel of laughs, then went back to the ward. She'd had a CT scan while I was gone, but no pain killers since 6 am, and no water. I ended up crying on the corridor, again, sobbing about the fact that she comes last because she has no voice and is behind a closed door. It made no difference - no one did anything. Finally a doctor came with results of the scan - a big kidney stone blocking her bladder, again. Which is what we were suggesting on Friday fucking night as the symptoms were the same as last time. She was good this one though and agreed, fuck paracetamol for kidney stones, codeine or morphine or both, and loads of water. I can't live through the ins and outs of how no one came to give water and why, but in the end the doc told me they were nervous about the PEG, I said for fuck's sake, it's not that hard, I do it when she's out with me, and the doc said, " You can do it? Er... would you mind?" So I got the fucking syringe and filled it with water and attached it to the tube and undid the clip and pushed the thingy and inserted the water and did up the clip, took off the syringe and repeated this four times and it wasn't that hard. Jesus. T from the care home arrived and when I told her she went mental about how little water ED had had and phoned the care home for a detailed list of times and amounts, which we then copied out and gave to the stupid bloody nurse. 200 ml 7 times a day. That's 1,400 ml, or nearly one and a half litres, fuckers.
And she's first on the list in the morning for an op to drain all the shit off, a nephrostomy, I think the doc said, so I need to be there at 8 and it's midnight now so I'm off. This doc reckons the feed causes the kidney stones to reform so quickly - she's going to speak to the dietitian and check the research to see what are the options.
I am grateful for: the care home staff for supporting me as well as ED through this - N the manager arrived at 9 this evening to watch over ED till she's asleep and let me come home; a chance at getting my benefits reinstated; fish pie made on Sunday for tea tonight, eventually; a blog to rant in; sleeping pills 12:09 a.m. - 16.05.17 ----------------------------------------------------------------------------------------- |
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