annanotbob2's Diaryland Diary ----------------------------------------------------------------------------------------- - 1. I'm doing fund-raising to try and get a wheelchair accessible van for ED. There's a comedy benefit night being organised by one of my cousins, who's in the comedy promoting business, and today generated a mass sponsored walk - so far ten people have volunteered to walk with me ten miles along the coast, between two piers and each get their own sponsors. YD is doing a poster/graphic - people who manage chains of pubs and shops are saying if I can get them a copy they can set up a jar on the counter which customers will drop change in, which adds up. Can you imagine what this feels like? A great big soft safety net of love and support, catching us as we were falling. My next task is to write a bit of blurb (like, tonight), for the poster and the facebook page, telling ED's story, describing her life and her prospects and what it would mean for her to be able to go out without having to book it days in advance and pay through the fucking nose to go and also if you cancel too late, which frankly, is not working out. Anyway, I can't write it. The task is exactly the sort of thing that used to come up in GCSE English exams, which I used to mark. Testing the candidate's ability to manipulate emotions with their use of language. But this is my daughter, my baby, locked in this body that's destroying itself and taking her with it. These are my friends and family that I am asking to contribute either their time or their money. If I didn't know how it worked, I could pour my heart out, but the whole thing is really just too distressing. I want to ask someone else to do it, but haven't been much of a friend lately to any of the ones that seem obvious to ask. But I am very stoned and quite overwhelmed by it all. And also my inner socialist is a bit uncomfortable at the individualistic nature of this endeavour. Not enough to sway me from the path, but enough to do my head in. But generally, it's better than could have been expected and I am suffused with gratitude and warmth. 11:25 p.m. - 14.08.13 ----------------------------------------------------------------------------------------- |
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